Group keeps their promise

Friday, February 22, 2013

Looking out the window you’d never know spring is officially 25 days away. Soon, the snow will be gone, and we’ll be watching for the first tulips to appear. It is a time of hope and renewal.

For Bedford’s Nicholas Dainiak, 9, and his family, hope is coming from the members of the MOMS Club of Bedford and the community. Nicholas suffers from Batten disease, a debilitating, and fatal, illness that affects mobility and muscle coordination, and causes dementia. The risk of disability and early death is greater if the person suffers symptoms at an early age. Those who develop the disease early can have vision problems that lead to blindness.

For several months, the MOMS Club, the organizers of the Our Promise to Nicholas Foundation’s Easter Egg Hunt, have been anticipating their annual fundraiser to help fight Batten disease.

The MOMS Club’s event is Saturday, March 23, and they are looking for sponsors now. Last year, corporate sponsors, local businesses and community volunteers helped raise $9,500 for the foundation. The event was attended by more than 800 people.

You can help by becoming a vendor sponsor or donating items for baskets raffled at the event.

To sponsor the event or for business advertising opportunities, contact Suzanne Bergeron of the MOMS Club of Bedford. She can be reached via email at optnegghunt@gmail.com. Tickets to the event are $5 per person, or $20 for a family.

Consider attending the fifth annual Easter Egg Hunt, and help bring hope to Nicholas and other children suffering from Batten disease.

For more on the event and Nicholas, see Page 11.