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Our Promise to Nicholas egg hunt raises $20K for Bedford’s Nicholas Dainiak, a victim of Batten’s disease

Friday, April 25, 2014

By LISA KAVENEY

Special to the Journal

Easter was in full swing as a very special event, the Our Promise to Nicholas Easter Egg Hunt, drew more than 1,200 guests who on April 12, enjoyed the fun-filled festivities at the NH Sportsplex Sports & Training Center, 68 Technology Drive, Bedford.

The dome there sheltered a crowd with smiling faces. Eggs blanketed the fields and kids scurried about for the coveted treats. The authentic compassion, dedicated volunteers and the deep commitment demonstrated by the OPTN’s board members blended together to make another exciting year at the OPTN Easter Egg Hunt, now in its sixth year.

Some $20,000 was raised in the largest and most extravagant OPTN event ever held. The OPTN Foundation is proud to have the dedication of the community in support of finding a cure for Batten disease. Batten, a currently fatal neurodegenerative disease, afflicts hundreds of children in the United States including Nicholas Dainiak, a 10-year-old Bedford resident.

The MOMS Club of Bedford worked for several months prepping for the event, gaining sponsorships, exhibitors and community support. Their work of partnering with corporate sponsors who generously gave their time, money and resources imparted a feeling of success that was enjoyed by all.

This year’s corporate sponsors included The NH Sportsplex, The Executive Health & Sports Center, Ira Lexus of Manchester and the Elliot Health System.

The MOMS Club of Bedford’s president, Suzanne Bergeron, who again served as chair of the event, said the response of all involved was overwhelming.

“Year after year, we are amazed by the generosity and enthusiasm of our many community partners and for the courage it takes to work diligently in the effort to raise awareness and financial support for Batten disease,” Bergeron said. “The monies raised will continue to support the research needed to find a cure for this awful disease. We are appreciative of all of the community support and donations, large and small, which make this event possible,”

Organizers said the stuffing of more than 6,000 eggs brings people together in the most positive state of mind. The gift of this event, they agreed, was showing the children and others that a lighthearted event can make a meaningful difference.

All agreed that Nicholas, in his own way, has brought together so many families, volunteers and community members to share the spirit of Easter and the love of a family working tirelessly for the hope of one day finding a cure for such a debilitating disease.

In addition to the raffle baskets, bake sales, exhibitor tables, entertainment, music and magicians, clowns and candy, a sense of deep pride was held for the work accomplished, the memories shared, and the reflection that on this day a difference was made.

For a complete list of the day’s attractions, generous sponsors and photo coverage of the sixth annual Our Promise to Nicholas, along with some outstanding photos courtesy of Laura Klein Photography, visit www.optneasteregghunt.com/.

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