Charitable Easter Egg Hunt is April 4

Spring fever will spread with the exciting activities at this year’s annual Our Promise to Nicholas Easter Egg Hunt, scheduled for 8:30-11 a.m. Saturday, April 4, at the NH Sportsplex in Bedford. All things bright will return with this children’s celebration of Easter.

OPTN’s mission is to raise funds and mold partnerships to promote awareness, provide education and fund the development of research to fight a rare and fatal brain illness called Batten Disease.

The OPTN Foundation is proud to have the overwhelming support of businesses and volunteers enthusiastically coming together providing time, money and resources.

This year’s corporate sponsors include the NH Sportsplex, The Executive Health & Sports Center, IRA Lexus of Manchester, Alkemy Partners, Catholic Medical Center, Bedford Ambulatory Surgical Center and Bank of New Hampshire. Set to be one of the largest indoor Easter Egg hunt events around, thousands of dollars are raised for the OPTN mission to fund research towards a cure for Batten Disease.

This event is more than a celebration of Easter; it is a celebration of life and memory of Nicholas Dainiak who lost his battle with the disease on May 9, 2014, his 11th birthday. It is the spirit of hope and community togetherness that makes this event so special. The heart and soul of this event is highlighted by the spirit of the children’s enjoyment and the knowledge that the OPTN Foundation’s mission is being carried forward. Your presence at this year’s festivities will provide funding for expert nursing care to the children suffering from Batten who are in attendance at the Annual Batten Disease Conference held this year in Chicago. Support also will provide funding for a necessary scientific study: a biorepository and natural history database through Harvard University and the University of Rochester.

The entire family can enjoy Easter “egg-citement” with ongoing entertainment and activities at this year’s festival. The NH Sportsplex will come alive as children scout the field and scramble for colorful candy and sticker filled eggs. Hunting will take place every ten minutes. For those not actively “hunting,” there will be live entertainment, including yoga for kids by Let’s Play & Namaste and a demonstration from the Bedford Martial Arts School. There will also be a magic show from Scott Jameson. Appearances from Wally the Green Monster, the Granite State Clowns, a Party Palace Princess and, of course, that famous bunny himself will fill everyone with joy. In addition, there will be games, face painting, bounce houses, a silent auction, a bake sale and numerous Easter baskets up for raffle.

Tickets are $8 per person or $30 per family. Register for the event at www.optnegghunt.eventbrite.com. Cash, check or charge will be accepted at the door. With the new action packed line-up, the OPTN Easter Egg Hunt aims to attract even more families within and outside the Bedford area. The NH Sportsplex is at 68 Technology Drive in Bedford. Complimentary shuttle service is available at Segway Parking Lot located just down the street at 14 Technology Drive in Bedford. For more information, visit www.ourpromisetonicholas.com.

Our Promise to
Nicholas Foundation

Established in 2009 as a non-profit charitable foundation, OPTN was founded by Chris and Heather Dainiak, of Bedford, after their son Nicholas was diagnosed with a rare, fatal neurological brain disease called Batten Disease. Nicholas’ parents promised him that they would work tirelessly to find a cure for this little-known disease. An estimated two to four children out of 100,000 in the United States are affected with Batten. This disease triggers seizures, blindness and immobility causing children die between the ages of eight and twelve.

Nicholas lost his battle to Batten on May 9, 2014. In keeping our promise to Nicholas, OPTN continues to work toward a cure. We are a leader with in the Batten community supporting worthy medical grants with financial aid and providing education to families and professionals fighting this disease. With the support of the National Institutes of Health we offer the opportunity for scientists to come together to create and fund innovative research proposals. We support the advancement of nurse education on rare diseases. These efforts are bringing new hope to those suffering from this fatal disease. Please join us battle Batten. For more information regarding this event and OPTN, visit www.ourpromisetonicholas.com.

Contact: Lisa Kaveney, MS OPTN Director of Development at lisakaveney@yahoo.com or (860) 301-3801.